Today, Brad and I got to hold Avery again. A month ago, I would've never been able to imagine not holding my sweet girl every. single. day. Only holding her twice in 3 weeks has almost ripped my heart out. I just want to scoop her up, nestle into her soft little neck and kiss her all over. I want to take away all of her pain, discomfort, agitation, confusion, and restlessness. I want to trade places with her. Please pray for continued healing of her lungs and the ability to keep her airway open, so that's she is able to breath on her own. That will determine the next steps in this whole process.
Jan. 24, 2015
Blessed. We have never felt more blessed. In the midst of what we feel is a 'nightmare' we have seen some of the most amazing acts of kindness shown to our family, people being brought to their knees to pray for our baby, and our faith growing deeper every single day.
Blessed. We have never felt more blessed. In the midst of what we feel is a 'nightmare' we have seen some of the most amazing acts of kindness shown to our family, people being brought to their knees to pray for our baby, and our faith growing deeper every single day.
We are so thankful for the time, money, and love you have given to our family. We are just blown away by all of our amazing friends and family members that are doing all that they can do to help us. Every fundraiser (tshirts, spaghetti supper, Zaxby's night, Randy's Barbecue, Chad's Challenge 5k, and more!) and community prayer that has happened has left us saying 'wow' every single time. There is a lot of bad in the world but man, there is so much good.
Avery's Angels, we thank you from the bottom of our hearts.
Jan. 25, 2015
Tomorrow's a big day... We will find out what this amazing group of doctors feels is best for Avery's heart. What kind of surgery is needed and when it should be. We pray for guidance and clarity for the doctors.
Tomorrow's a big day... We will find out what this amazing group of doctors feels is best for Avery's heart. What kind of surgery is needed and when it should be. We pray for guidance and clarity for the doctors.
Jan. 26, 2015
Favorite part of my day. She nestles right in and falls into a sound sleep. ❤
Favorite part of my day. She nestles right in and falls into a sound sleep. ❤
The plan for Avery is to have open heart surgery on Wednesday to repair the VSD. After that, we will begin the weaning of the ventilator again to the point of extubation. Our prayer is still that she is able to keep her airway open on her own. We feel very confident with the team's decision to operate sooner rather than later; we know she is getting the best care.
I can't say this enough: thank you so much for the nonstop prayers. We can feel them and I know our God can hear them.
I was reminded of Exodus 14:14 today... "The Lord will fight for you. You need only to be still." Thank you, lord. 🙏 I pray we can just be still.
Jan. 28, 2015
I can't begin to describe my love for this girl. We were prepped today with "it's gonna be a roller coaster, just be ready" and boy has it been just that. Avery endured the open heart surgery and is being closely monitored. A short while ago, she had some bleeding that the surgeon decided needed to be looked at, so they went back in and fixed the problem. My sweet baby has gone through so much this past month and still has a long road ahead. Please continue to pray for her strength, healing, comfort, guidance for the doctors, nurses, and surgeons, and peace for our family. We love you all.
I can't begin to describe my love for this girl. We were prepped today with "it's gonna be a roller coaster, just be ready" and boy has it been just that. Avery endured the open heart surgery and is being closely monitored. A short while ago, she had some bleeding that the surgeon decided needed to be looked at, so they went back in and fixed the problem. My sweet baby has gone through so much this past month and still has a long road ahead. Please continue to pray for her strength, healing, comfort, guidance for the doctors, nurses, and surgeons, and peace for our family. We love you all.
"She is clothed with dignity and strength. She laughs without fear of the future." Proverbs 31:25
Jan. 31, 2015
We are so thankful Avery's heart surgery is behind us. She did have some bleeding after the operation but it was fixed with another small procedure. Right now is just a waiting game (waiting is hard!!) to see how she handles her body's new 'flow'. She has had episodes of pulmonary hypertension, which gets pretty scary, but the episodes seem to be getting fewer and farther between. Right now, her little lungs need to continue to heal so that she won't have so much trouble when the time comes to try to get her off of the ventilator. We have heard lots of positive things from the doctors and nurses (who are the best, by the way) about her small improvements. We hold onto these little celebrations because each day brings something brand new and we have to stay positive for our sweet girl, who is fighting so hard.
We are so thankful Avery's heart surgery is behind us. She did have some bleeding after the operation but it was fixed with another small procedure. Right now is just a waiting game (waiting is hard!!) to see how she handles her body's new 'flow'. She has had episodes of pulmonary hypertension, which gets pretty scary, but the episodes seem to be getting fewer and farther between. Right now, her little lungs need to continue to heal so that she won't have so much trouble when the time comes to try to get her off of the ventilator. We have heard lots of positive things from the doctors and nurses (who are the best, by the way) about her small improvements. We hold onto these little celebrations because each day brings something brand new and we have to stay positive for our sweet girl, who is fighting so hard.
Please hug your little ones tight tonight, we would give anything to be able to do just that.
We sure do love all of Avery's Angels.
Feb. 1, 2015
I hesitate to say that it's been a good day but it has been a good day! Her 'episodes' have been very spread out today and they have been able to come down on her meds a little bit. I am reading a book now about holding on to hope and it said something that really hit me... It says to "take comfort and find confidence in knowing that although the purpose in your suffering may be unseen, God does have a purpose, and part of that purpose is to display His work in your life." I have said since day one that there is a reason in all of this, I don't question any of it, and I know we won't be given a test without an amazing testimony coming out of it. We are so thankful for this little face.
I hesitate to say that it's been a good day but it has been a good day! Her 'episodes' have been very spread out today and they have been able to come down on her meds a little bit. I am reading a book now about holding on to hope and it said something that really hit me... It says to "take comfort and find confidence in knowing that although the purpose in your suffering may be unseen, God does have a purpose, and part of that purpose is to display His work in your life." I have said since day one that there is a reason in all of this, I don't question any of it, and I know we won't be given a test without an amazing testimony coming out of it. We are so thankful for this little face.
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